Sometimes I Come Back

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Anni M

Beta-Tester */ Moderator
Moderator
Apr 12, 2006
4,790
1,704
A Canuck Guelphling
Some may not remember me and some remember me all too well!
I've been a pretty much of a slacker and a bad BAD mod when it comes to checking in with my first and favourite message board (member since autumn 2005! where DOES the time go? LOL) First of all, I want to wave a hello there to my friends n folken on here (●´∀`)ノ♡ (hellloooooo!!!) and to clear up a thing or 3.
A) I have received an occasional mail from old members who know how it's going with me. Where this info comes from is a mystery. Peeps on Facebook? On here? Dunno...
B) So I have come to clear up my health status.
C) I ain't daid yet!
So here it is , straight from the MIA Mod's Mouth. The SK seasoned members know well that I have full blown Lupus. I was diagnosed in 2013, but rightfully suspect that I have had it longer. In the last two years it has run rampant through this old chick, which involved 5 ...no 6 hospital stays. This year's fun n games involved a stroke event (but thankfully not a stroke, according to the doc at the Stroke Clinic this past week, so I dodged a big one there!) and also had major surgery on my wrist, because this disease just wants to get into my bod and have it's nasty way with me. If it hits any large organs, I'll be ROONT! Anyway, all infections have been dealt with and the follow-ups have been fine. I need to add that the meds take as much out of me as possible, so it is like a Catch 22 situation.
Back in May, the BIG DOCS at the Toronto Lupus Clinic placed me on daily inter-muscular shots of prednisone, as my body was not absorbing the oral meds. The amount is being tapered to nada so that they can replace it with a monthly infusion named Benlysta which has been very successful with people who have this disease. I was on this before and did quite well, but due to other complications, had to stop. As of next week, I will be ready to try again!
YAYYY! I did not intend to write an entire story regarding my health, just needed to set straight any leaked info.
ANNND, I really do miss the MB Tet so it was imperative that I pop in to say hey and ask about YOU! Are you well? Staying that way? If so, good! If not, The Great Spirit has much to give.
Sighhh, I need to sign off soon, but if I can find the joke thread, I may have a few from Unkee B to share. Always leave 'em laughing. And to those who connect with me elsewhere, bless you for caring. It means a lot.
('∀'●)♡
Much luv n hugs
xxooa
 

Anni M

Beta-Tester */ Moderator
Moderator
Apr 12, 2006
4,790
1,704
A Canuck Guelphling
Anni M - Hi Anni, so wonderful to see you on the MB. You have always been in praetors an goo thoughts. Right, it is only Love and Green Lights all the way. Promise to take care, stop by as you can. Continued healing vibes!!
I miss you Spidey, and never forget you. Thank you for your kind words :cheerful:
hugs! xxooa
 

FlakeNoir

Original Kiwi© SKMB®
Moderator
Apr 11, 2006
44,082
175,641
New Zealand
Some may not remember me and some remember me all too well!
I've been a pretty much of a slacker and a bad BAD mod when it comes to checking in with my first and favourite message board (member since autumn 2005! where DOES the time go? LOL) First of all, I want to wave a hello there to my friends n folken on here (●´∀`)ノ♡ (hellloooooo!!!) and to clear up a thing or 3.
A) I have received an occasional mail from old members who know how it's going with me. Where this info comes from is a mystery. Peeps on Facebook? On here? Dunno...
B) So I have come to clear up my health status.
C) I ain't daid yet!
So here it is , straight from the MIA Mod's Mouth. The SK seasoned members know well that I have full blown Lupus. I was diagnosed in 2013, but rightfully suspect that I have had it longer. In the last two years it has run rampant through this old chick, which involved 5 ...no 6 hospital stays. This year's fun n games involved a stroke event (but thankfully not a stroke, according to the doc at the Stroke Clinic this past week, so I dodged a big one there!) and also had major surgery on my wrist, because this disease just wants to get into my bod and have it's nasty way with me. If it hits any large organs, I'll be ROONT! Anyway, all infections have been dealt with and the follow-ups have been fine. I need to add that the meds take as much out of me as possible, so it is like a Catch 22 situation.
Back in May, the BIG DOCS at the Toronto Lupus Clinic placed me on daily inter-muscular shots of prednisone, as my body was not absorbing the oral meds. The amount is being tapered to nada so that they can replace it with a monthly infusion named Benlysta which has been very successful with people who have this disease. I was on this before and did quite well, but due to other complications, had to stop. As of next week, I will be ready to try again!
YAYYY! I did not intend to write an entire story regarding my health, just needed to set straight any leaked info.
ANNND, I really do miss the MB Tet so it was imperative that I pop in to say hey and ask about YOU! Are you well? Staying that way? If so, good! If not, The Great Spirit has much to give.
Sighhh, I need to sign off soon, but if I can find the joke thread, I may have a few from Unkee B to share. Always leave 'em laughing. And to those who connect with me elsewhere, bless you for caring. It means a lot.
('∀'●)♡
Much luv n hugs
xxooa
Hiya Anni-girl, ♥ good to see you here!
Your challenges have been varied and many, I do keep up with you on FB, (even when I'm not always vocal) and am always sending good healthy vibes your way. ♥

(As to an information leak, I'm only ever passing on messages to DJ (who doesn't have FB) and Marsha, because they care about you very much and Deejers especially is always wondering how you're doing.... but you know this already because I'm also passing on their replies to you. :biggrin2: )

Good luck with the Benlysta, I hope you will get some very positive results from it this time.

:biglove:
 

GNTLGNT

The idiot is IN
Jun 15, 2007
87,651
358,754
62
Cambridge, Ohio
....Anni girl, I continue to hope for long term relief from this POS auto-immune disease......my wife suffers from RA and fibro-so have been the some of the route you have.....laughter does indeed help, so maybe this will give you a grin....

a7fd693334589a70b4628e762a1f51fe.jpg
 

Neesy

#1 fan (Annie Wilkes cousin) 1st cousin Mom's side
May 24, 2012
61,289
239,271
Winnipeg, Manitoba, Canada
Some may not remember me and some remember me all too well!
I've been a pretty much of a slacker and a bad BAD mod when it comes to checking in with my first and favourite message board (member since autumn 2005! where DOES the time go? LOL) First of all, I want to wave a hello there to my friends n folken on here (●´∀`)ノ♡ (hellloooooo!!!) and to clear up a thing or 3.
A) I have received an occasional mail from old members who know how it's going with me. Where this info comes from is a mystery. Peeps on Facebook? On here? Dunno...
B) So I have come to clear up my health status.
C) I ain't daid yet!
So here it is , straight from the MIA Mod's Mouth. The SK seasoned members know well that I have full blown Lupus. I was diagnosed in 2013, but rightfully suspect that I have had it longer. In the last two years it has run rampant through this old chick, which involved 5 ...no 6 hospital stays. This year's fun n games involved a stroke event (but thankfully not a stroke, according to the doc at the Stroke Clinic this past week, so I dodged a big one there!) and also had major surgery on my wrist, because this disease just wants to get into my bod and have it's nasty way with me. If it hits any large organs, I'll be ROONT! Anyway, all infections have been dealt with and the follow-ups have been fine. I need to add that the meds take as much out of me as possible, so it is like a Catch 22 situation.
Back in May, the BIG DOCS at the Toronto Lupus Clinic placed me on daily inter-muscular shots of prednisone, as my body was not absorbing the oral meds. The amount is being tapered to nada so that they can replace it with a monthly infusion named Benlysta which has been very successful with people who have this disease. I was on this before and did quite well, but due to other complications, had to stop. As of next week, I will be ready to try again!
YAYYY! I did not intend to write an entire story regarding my health, just needed to set straight any leaked info.
ANNND, I really do miss the MB Tet so it was imperative that I pop in to say hey and ask about YOU! Are you well? Staying that way? If so, good! If not, The Great Spirit has much to give.
Sighhh, I need to sign off soon, but if I can find the joke thread, I may have a few from Unkee B to share. Always leave 'em laughing. And to those who connect with me elsewhere, bless you for caring. It means a lot.
('∀'●)♡
Much luv n hugs
xxooa
I do remember you when you were a mod here - so good to hear that you are fighting off lupus and winning! Way to go - keep it up

Pace yourself here and take it easy - don't overdo it at first.

((((Anni M )))))

Saying a prayer for you that things continue to improve
BuYl-17r-1.gif
 

Debbie913

Well-Known Member
May 27, 2011
6,563
18,409
Colorado
(((((Anni))))
Good to hear from you! I just love how upbeat and positive you are, what with all you've been going through. Thoughts and prayers and good vibes are always here for you. :) I'm looking forward to whatever you may leave in the joke thread, too...great stuff in your posts!!
 

Maddie

Even a stopped clock is right twice a day.
Jul 10, 2006
4,945
9,346
that dollhouse at the end of the street
(((((Anni))))
Good to hear from you! I just love how upbeat and positive you are, what with all you've been going through. Thoughts and prayers and good vibes are always here for you. :) I'm looking forward to whatever you may leave in the joke thread, too...great stuff in your posts!!


Exactly, what she said. I thought that was you I saw out there! I'm not sure if Id switched to Maddie since last I saw you ( also AmandaRose) but wanted to say its so lovely to see you and send you my Warmest wishes and prayer that everything will get better for you in every way that you need. Allways a laugh and a giggle I so fondly remember about you the most, and this girl, who not only do you make me think of her, but she, always makes me think of you. :smile2: (((((Anni)))))

4801ffbe3d33451ccd0823d5fe5b2ff4.jpg
 
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Anni M

Beta-Tester */ Moderator
Moderator
Apr 12, 2006
4,790
1,704
A Canuck Guelphling
Hiya Anni-girl, ♥ good to see you here!
Your challenges have been varied and many, I do keep up with you on FB, (even when I'm not always vocal) and am always sending good healthy vibes your way. ♥

(As to an information leak, I'm only ever passing on messages to DJ (who doesn't have FB) and Marsha, because they care about you very much and Deejers especially is always wondering how you're doing.... but you know this already because I'm also passing on their replies to you. :biggrin2: )

Good luck with the Benlysta, I hope you will get some very positive results from it this time.

:biglove:
Oh Hey Flakey-Girl! :big_grin:
I know a share a lot about my lupus on FB, because this is how I keep in touch with the Bullochs, other family members and those peeps I know for REAL... but just to hear from someone via e-mail out of the blue tossed me down the steps a bit. I recall asking you to keep Deej n Marsha in the loop about all of it. Of course they should know.
As for the Benlysta, my lupus clinic appt is this Thursday. I will learn then if I may begin the following week...and yes, I do hope that it is as successful as the first round was!
hugs!
xxooa!
╭(◔ ◡ ◔)/
 

Anni M

Beta-Tester */ Moderator
Moderator
Apr 12, 2006
4,790
1,704
A Canuck Guelphling
....Anni girl, I continue to hope for long term relief from this POS auto-immune disease......my wife suffers from RA and fibro-so have been the some of the route you have.....laughter does indeed help, so maybe this will give you a grin....

a7fd693334589a70b4628e762a1f51fe.jpg
A grin? I LMAO!!! Can't wait until I am off this crap. LOL No selfies from me (and the chippie) until our cushing goes down!
I hate looking like a Macy's Parade float! :go:
xxooa