Wherefore Art Thou.

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Dana Jean

Dana Jean

Dirty Pirate Hooker, The Return
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gniknehpets said:
Hope everyone else is doing ok? Not much downtime to go back and check threads just all know tower and I are thinking of you all too. Finally got dr to get his a$$ in gear and do something. To be blunt I went to this last appointment looking for blood. His. I guess he finally realized we were serious. Told him we were taking mom to the UW in Madison on Monday and camping out in the er until someone helped mom if he didn't do the tests we requested NOW, TODAY. Got MRI this afternoon. When we know results of that we will move to next step. That's all we've been asking for since June. Mom refuses to see anyone else and having the tests done close to home so she wouldn't have to travel is the best for her. I've been in contact with other drs and from the history and symptoms they all say that lung cancer which has metastasized to her brain will most likely be the diagnosis. She has gone down hill so bad the past 3 weeks. We're still doing 24 hour care but after next Wednesday I need to set up my house for my post-op and rest. My blood pressure is high and I'm having dizzy spells from the stress I'm sure. It'll all be on tower and our other sisters shoulders then. We'll get through this. Everyone does and we are so lucky to have enough sisters to help.

Be safe everyone and thanks for all the prayers and thoughts.
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I am just so sorry for the fear and anxiety and exhaustion that this is having on all of you. When someone in a family has cancer, the whole family has cancer It's just a fact. I am thinking about you guys so much and hope for the best. hugs to all
 
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Neesy

Neesy

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May 24, 2012
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gniknehpets said:
Hope everyone else is doing ok? Not much downtime to go back and check threads just all know tower and I are thinking of you all too. Finally got dr to get his a$$ in gear and do something. To be blunt I went to this last appointment looking for blood. His. I guess he finally realized we were serious. Told him we were taking mom to the UW in Madison on Monday and camping out in the er until someone helped mom if he didn't do the tests we requested NOW, TODAY. Got MRI this afternoon. When we know results of that we will move to next step. That's all we've been asking for since June. Mom refuses to see anyone else and having the tests done close to home so she wouldn't have to travel is the best for her. I've been in contact with other drs and from the history and symptoms they all say that lung cancer which has metastasized to her brain will most likely be the diagnosis. She has gone down hill so bad the past 3 weeks. We're still doing 24 hour care but after next Wednesday I need to set up my house for my post-op and rest. My blood pressure is high and I'm having dizzy spells from the stress I'm sure. It'll all be on tower and our other sisters shoulders then. We'll get through this. Everyone does and we are so lucky to have enough sisters to help.

Be safe everyone and thanks for all the prayers and thoughts.
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Hang in there - it's tough - just try to be with her as much as you can (please take of you, too!) :burn_joss_stick:
 
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gniknehpets

gniknehpets

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Oct 20, 2009
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No MRI results. Report is waiting for radiologist to sign. I know they're busy but meanwhile my whole family is in agony listening to our poor mom be out of her head with weeping and screaming. She is in such mental agony it is horrible. Whatever is wrong with her, cancer, dementia, it's a demon torturing her. She still has a lot of lucid times which sometimes we think makes it worse for her as she knows she's in trouble and it makes it that much harder. Horrible to say but we almost wish it would just take over completely and at least she wouldn't have the sorrow of knowing she's losing her mind. It makes us sick to think that but how much more can she take. And the guilt feelings we have for thinking it. What a nightmare.

I know everyone here has had terrible sorrow in their lives at one time or another. We can't escape it, it's part of life. I don't want to be moaning and groaning here all the time but it does help to have a place to vent my frustration and sorrow. I want to thank you all for giving me a place to feel ok to do just that.
 
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cat in a bag

cat in a bag

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I am so sorry you all haven't gotten any definitive answers. The waiting is awful. Busy or not, it just doesn't seem like the medical people are giving you all proper attention. My heart goes out to you all for having to deal with seeming indifference from the people you are seeking help from on top of the stress and worry and heartache. Keeping you all in my thoughts and prayers, I am glad coming here to vent is helping a bit.

((((Pets, Tower, Mom and family))))
 
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Dana Jean

Dana Jean

Dirty Pirate Hooker, The Return
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Apr 11, 2006
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The High Seas
gniknehpets said:
No MRI results. Report is waiting for radiologist to sign. I know they're busy but meanwhile my whole family is in agony listening to our poor mom be out of her head with weeping and screaming. She is in such mental agony it is horrible. Whatever is wrong with her, cancer, dementia, it's a demon torturing her. She still has a lot of lucid times which sometimes we think makes it worse for her as she knows she's in trouble and it makes it that much harder. Horrible to say but we almost wish it would just take over completely and at least she wouldn't have the sorrow of knowing she's losing her mind. It makes us sick to think that but how much more can she take. And the guilt feelings we have for thinking it. What a nightmare.

I know everyone here has had terrible sorrow in their lives at one time or another. We can't escape it, it's part of life. I don't want to be moaning and groaning here all the time but it does help to have a place to vent my frustration and sorrow. I want to thank you all for giving me a place to feel ok to do just that.
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You vent away, no apologies.
 
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Spideyman

Spideyman

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Jul 10, 2006
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gniknehpets said:
No MRI results. Report is waiting for radiologist to sign. I know they're busy but meanwhile my whole family is in agony listening to our poor mom be out of her head with weeping and screaming. She is in such mental agony it is horrible. Whatever is wrong with her, cancer, dementia, it's a demon torturing her. She still has a lot of lucid times which sometimes we think makes it worse for her as she knows she's in trouble and it makes it that much harder. Horrible to say but we almost wish it would just take over completely and at least she wouldn't have the sorrow of knowing she's losing her mind. It makes us sick to think that but how much more can she take. And the guilt feelings we have for thinking it. What a nightmare.

I know everyone here has had terrible sorrow in their lives at one time or another. We can't escape it, it's part of life. I don't want to be moaning and groaning here all the time but it does help to have a place to vent my frustration and sorrow. I want to thank you all for giving me a place to feel ok to do just that.
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Pets- you and family are held in prayers. If you do not get results by Monday, you might consider a strong voice. i hope her doctor isn;t holding back on results. I have great concerns as you soon will face surgery and you need to be in a positive vibe. More prayers will be said. Hold firm, Pets. Let go and Let God. You know I am here.
 
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HollyGolightly

HollyGolightly

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Sep 6, 2013
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gniknehpets said:
No MRI results. Report is waiting for radiologist to sign. I know they're busy but meanwhile my whole family is in agony listening to our poor mom be out of her head with weeping and screaming. She is in such mental agony it is horrible. Whatever is wrong with her, cancer, dementia, it's a demon torturing her. She still has a lot of lucid times which sometimes we think makes it worse for her as she knows she's in trouble and it makes it that much harder. Horrible to say but we almost wish it would just take over completely and at least she wouldn't have the sorrow of knowing she's losing her mind. It makes us sick to think that but how much more can she take. And the guilt feelings we have for thinking it. What a nightmare.

I know everyone here has had terrible sorrow in their lives at one time or another. We can't escape it, it's part of life. I don't want to be moaning and groaning here all the time but it does help to have a place to vent my frustration and sorrow. I want to thank you all for giving me a place to feel ok to do just that.
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Oh honey, that's so awful for you all to go through. Please don't feel guilty wishing her peace and freedom from this - it's the healthy way of thinking, any one of us would feel the same. It's so hard to go through, but you're both being so amazing staying with her and taking care of her. It's so important. I'm so glad you come here and let go for a minute. I'm sure it helps.
 
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