Yeah, I'm on 200 mg of topamax/day. Plus 2 antidepressants. Mostly to help with nerve issues, but antidepressants are generally helpful when you're kind of depressed about being in pain all the time.
And I take magnesium and industrial-strength Vitamin D.
I also have triptan medications to take when a migraine happens, those are vasoconstrictors. And two pain medications, one narcotic, one non-.
It's taken years to find a good balance of meds that make a difference, but don't have side effects worse than whatever we're trying to fix, and work well together. Unfortunately, that still leaves me pretty far out in the weeds, but I know from when I haven't been able to take them (for instance, my surprise baby :-D ) how bad it gets, and how fast!
I have fibromyalgia, too, so it's pretty tricky. But my Neuro and Rheum work together to avoid overlap, which is incredibly helpful.
So, I don't look to them for any cures, miracle or otherwise, any more. I knew we'd kind of hit a wall a few years back when both docs started saying things like, "Hey, there's a new <antiseizure/antidepressant/sleep medication/rescue med/insert pharmaceutical here> on the market now. It's off-label for your stuff, but we haven't tried it yet. Will your insurance cover it? Wanna give it a go?"
That's when I decided to drag the focus back to getting on the best protocol we could find and sticking with it. All the ramping up and down, on and off new meds, was making it impossible to function.
All that said, I have no complaints. My docs work with me, my insurance is better than some I've seen, and I don't have anything terminal. I have good days and bad days, and I just focus on the good ones.
I've had some amazing adventures because of all this. Well, stuff like I had an MRI of my brain. That's pretty exciting for a stay at home mom! (Also, 30 minutes is a very long time not to talk to anybody. There is a guy just sitting there in the next room, hooked up to you with a mic and everything, but does *he* want to hear any of the fabulous insights I'm having while I'm in the tube? No, he does not.
)
That was a really long threadjack on a post about paperbacks. I'm sorry.