I wrote this guest blog several months ago. This is on a great little blog site for those with chronic pain -- mostly young folks but they let us geezers talk occasionally 
https://youngsickinvisible.wixsite.com/blog/single-post/2018/09/19/Guest-Post-Terys-Story
https://youngsickinvisible.wixsite.com/blog/single-post/2018/09/19/Guest-Post-Terys-Story