Chronic Pain

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Spideyman

Uber Member
Jul 10, 2006
46,336
195,472
79
Just north of Duma Key

Neesy

#1 fan (Annie Wilkes cousin) 1st cousin Mom's side
May 24, 2012
61,289
239,271
Winnipeg, Manitoba, Canada
I wrote this guest blog several months ago. This is on a great little blog site for those with chronic pain -- mostly young folks but they let us geezers talk occasionally ;)

https://youngsickinvisible.wixsite.com/blog/single-post/2018/09/19/Guest-Post-Terys-Story
Thanks for the link - wishing you all the best and hope the pain becomes more manageable (((((Tery))))

I just read your story - gave me more insight into your condition - sounds awful - wish there was something I could do to help :frown-new:
 

GNTLGNT

The idiot is IN
Jun 15, 2007
87,651
358,754
62
Cambridge, Ohio
Interesting,but what causes it? Is it an autoimmune disease,wonder why your body does this..hope that eventually a cure is found or you can find treatments to ease your pain..
The specific underlying cause of erythromelalgia remains unknown. Erythromelalgia is thought to result from vasomotor abnormalities or dysfunction in the normal narrowing (constriction) and widening (dilation) of the diameter (caliber) of certain blood vessels, leading to abnormalities of blood flow to the extremities. Erythromelalgia may be an isolated, primary condition or occur secondary to various underlying disorders. Primary erythromelalgia may appear to occur randomly for unknown reasons (sporadically) or may be familial, suggesting autosomal dominant inheritance.
 

HollyGolightly

Well-Known Member
Sep 6, 2013
9,660
74,320
54
Heart of the South
Tery Thank you for sharing your story! I knew you struggled with something, but never knew what. You're brave and strong for being your own advocate with doctors - that's hard - some are so God-like they won't listen. Those mean comments are from the small minded unhappy people of the world. Pay them no mind. Your husband sounds very helpful and kind - you're blessed. Peace to you!
 

Tery

Say hello to my fishy buddy
Moderator
Apr 12, 2006
15,304
44,712
Bremerton, Washington, United States
Tery Thank you for sharing your story! I knew you struggled with something, but never knew what. You're brave and strong for being your own advocate with doctors - that's hard - some are so God-like they won't listen. Those mean comments are from the small minded unhappy people of the world. Pay them no mind. Your husband sounds very helpful and kind - you're blessed. Peace to you!
((Tery)) I hope that they can find something to help with the pain. Foot pain is no fun.

Thank you! By sharing our stories, we might help someone else. :love_heart:
 

mjs9153

Peripherally known member..
Nov 21, 2014
3,494
22,165
The specific underlying cause of erythromelalgia remains unknown. Erythromelalgia is thought to result from vasomotor abnormalities or dysfunction in the normal narrowing (constriction) and widening (dilation) of the diameter (caliber) of certain blood vessels, leading to abnormalities of blood flow to the extremities. Erythromelalgia may be an isolated, primary condition or occur secondary to various underlying disorders. Primary erythromelalgia may appear to occur randomly for unknown reasons (sporadically) or may be familial, suggesting autosomal dominant inheritance.
Thanks for that GNT...gives some partial understanding of what it is,pray that the researchers will find the way to a cure someday,and that it is soon..hang in there Tery! :)